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It definitely sounds like you both need support. My son is disabled and had very high medical needs for the first 2 years of his life. I was massively overwhelmed for a really long time, luckily my parents live quite close by so we had my mom to come over and take some shifts with Liam so we could get some rest and feel like we had *some* kind of fallback. The breakthrough for me really came when I got into a support group for parents of children with special needs (my husband came a couple of times, but he's didn't stick with it). When he was 13 months old, I was diagnosed with PTSD and started treatment and I won't tell you it's been smooth sailing ever since, it's certainly been a lot better. Are you in the United States? If so, you should be receiving Early Intervention services. You can ask your son's service provider to look into respite care, counseling, and support groups for you. If you are in the US and not getting EI services, google it. It's federal law and there's absolutely no way your son doesn't qualify - CP and blindness are both presumptive diagnoses for services.
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Sep 23, 2012 19:38
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We are a No Cry Sleep Solution family. Worked great for us.
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Oct 12, 2012 07:16
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Senso posted:What's the gist of this "third solution", if I may ask? Let the baby cry sometimes and go see him sometimes? I can hardly imagine a revolutionary third way. No, the gist of the third method is identifying sleep patterns, then gently shifting them while helping the baby learn to self soothe. There's no letting the baby cry. Break down the act of putting to bed into a whole bunch of tiny steps, there's more than just HOLD BABY and PUT BABY DOWN AND WALK AWAY. There's a lot of suggestions about routines (the book recommends a flexible routine, but a routine nonetheless), including daytime routines to facilitate healthy sleep, helping your baby learn that the bed/crib is a happy place to be, using key words, music, and loveys - and how to introduce them, how to break down the getting into bed process into tiny steps that your baby will accept so that eventually you CAN get to where you want to be with sleeping. It's not a quick fix, it's a long slow incremental change.
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Oct 12, 2012 20:58
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The Period of PURPLE Crying is a program backed by the National Center for Shaken Baby Syndrome. It isn't intended to be a sleep training method. It is an evidence based program intended to give parents a better understanding of how and when babies cry and what to do about it, as a method to reduce people shaking their babies to death. The whole "delay feeding at night" thing isn't meant to be "delay for 20 minutes", it's meant to be like the step in No-Cry Sleep Solution where you determine whether your child actually needs food or instead just needs help learning how to resettle when they startle awake at night. You still calm and soothe the baby, you just change up the order of things, so instead of immediately putting the baby to breast and then patting their back, you try patting their back before offering the breast.
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Oct 16, 2012 17:10
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El Gato posted:Hi all, Developmentally, preemies should be dated as an adjusted age for at least the first year. So she's 3 months but was 6 weeks early, which means that her developmental age is 6 weeks adjusted. Feel free to start having a routine as in things that you do in a certain way every day, but I wouldn't expect her to start really responding to those routines and nighttime cues for a while yet.
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Oct 16, 2012 19:40
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Papercut posted:The Healthy Sleep Habits book says if the baby is early, then the schedule shifts so you don't count time before the due date. In sleep terms your baby would only be 6 weeks old, and thus just entering the point where she will develop a predictable sleep schedule. I don't know how true that is, though. It is true, according to the neonatalogists who treated my son in NICU when he was born a preemie. They told us to adjust his age to his duedate for the first year at least.
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Oct 16, 2012 19:44
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Counselor Sugarbutt posted:??? I wasn't speaking directly to you, I was trying to answer the questions of other people in the thread who seemed confused about the purpose of the program.
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Oct 17, 2012 01:06
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car dance posted:She's 8 months old today actually. My son was drinking from straw cups at 8 months, didn't use a sippy cup ever. And he's developmentally delayed, so developmentally he was much closer to a 2 or 3 month old at the time and had muscle tone problems resulting in him not being able to sit independently until 13 months. We skipped sippy cups altogether at the urging of his occupational therapist and speech therapists, who all highly discouraged sippy use and think straws are the bees knees (straws require active lip closure and muscle use in the cheeks, which is good for speech development).
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Nov 6, 2012 19:33
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dreamcatcherkwe posted:The manual ones worked fine for me. They weren't as comfortable as the electric but since insurance is paying for it, I see no reason not to get it. I don't have a preference to recommend though. Yeah, I know a couple of women who found the manual more useful than their electric pumps. I didn't have much success with manual and the one I had is now off the market, so I have no recommendation.
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Nov 28, 2012 03:44
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My kid mostly prefers classic rock. He went through a big Lynyrd Skynyrd phase for a while, then it was all Aerosmith all the time: "MORE SWEE EMO-SHUN?" His current favorite song is House of The Rising Sun by The Animals. We didn't listen to a lot of "baby" music when he was tiny - the oversimplified baby versions of orchestral music always resulted in tears, so we stuck with grown up music. We do own and listen to most of the TMBG kids' albums, because I like them.
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Nov 28, 2012 19:24
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bamzilla posted:Mine has a 5 point harness system. Our Chicco Capri has a 5 point harness as well.
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Dec 9, 2012 21:37
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Ariza posted:We've moved so we've had a few different pediatricians now. The general consensus that I'm getting is to wait until some symptoms are present before trying a CT scan. The cyst may just fade away or it might grow larger. They said that we could try a CT scan but they may not see anything, but that doesn't mean it's not there. It may be a bad angle, etc. Before she was born the perinatologists we met with said she'd need annual x-rays starting at 2, but the pediatricians think that's not necessary. I've read all the journal articles I can find and the medical community is pretty divided on whether asymptomatic cysts should be removed or not. Things turn bad very, very quickly if they burst and their behavior is pretty erratic on that front. Does your baby see a pulmonologist? My son has multiple medical issues and while our pediatrician is in charge of the day to day, vaccinations, earaches and sniffles, his specialists generally make the bigger calls. His pediatrician is *wonderful* but as he himself points out regularly, he's a general care doctor and doesn't have the knowledge that the specialists have. He's referred us out multiple times for things where he has said "Well, it doesn't really concern me, but then I'm not an XXXX specialist, so if you're concerned, we'll get it checked just in case." Usually he's right, but a couple of times it has been a real problem (orthopedics comes to mind. Oy, my child and his ortho problems) and either way, I feel more comfortable with things if the doctor who specializes in it says "eh, no biggie". I guess what I'm trying to say is perhaps you might ask for a referral to a pulmonologist, since it is affecting her lungs. Let the specialists take a look, they are far more current in their knowledge and will likely be more able to make a call about when to do a CT. (FWIW, my son has had 3 CTs - one at 5 months, one at 2 and one at 4 - he's got a heart condition. The first CT was for diagnosis, the others have been part of buildups to completely unrelated surgeries). My son was a preemie, his lungs were under developed at birth, so he was taken to NICU and given surfactant. Then he had a pneumothorax (the pressure of the oxygen they had him on blew his lung). He had an apnea problem in NICU - would stop breathing with regularity until someone went and jostled him. He came home on liquid caffeine to stimulate him so he wouldn't stop breathing. He was on that at home for a month. The urge for me to watch him 24/7 to ensure he didn't stop breathing didn't *really* begin fade for about the first....8 months or so I think. We ended up having my mother basically living with us for the first 2-3 months, so that there was always an adult awake to watch him (number of times he went apnic and had to be reminded to breathe at home: Zero). And even after that, I still checked probably more often than other people might have. The good news is that it DOES eventually go away. He's 5.5 now, and once he's down for the night, I check on him once at about midnight to make sure he hasn't kicked the blankets off and that's it.
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Dec 13, 2012 21:21
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I kept a few of Liam's preemie outfits. Occasionally I take it out and look at it and cannot even comprehend a human being that tiny. There's just NO WAY he was that small. Then I look at pictures of him wearing the outfit and it was huge on him, he was positively swimming in it.
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Dec 19, 2012 02:23
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Ben Davis posted:Maybe you could measure one dollop of soap on the washcloth when you run his bath? This is a good idea. I'd get some sample sized bottles and when they are empty, put small amounts in at a time so he doesn't have access to entire bottles to waste. As for wasting time, I think that's just kind of par for the course. I'd try doing brush teeth/bathe an hour before bedtime, that's enough time that if he actually gets it done expeditiously, he could still have 30-45 minutes of something fun. If you start that whole process only 30 minutes before bedtime, then yeah, I don't really see much motivation to finish early - 5-10 minutes is the most he's going to get out of it, so why not just waste those 5-10 minutes in the bathroom? I love to read but if someone told me I'd get FIVE WHOLE MINUTES to read before bed, I'd be like "ummmm, how about no cause that sucks." but 30-45 minutes to read? Sold, man. Shnakepup posted:We might try this...frame it as "take your shower now...if you take too long you'll go to bed but if you're quick then you can stay up for another hou". Then again, I've always heard "bribing" kids to get them behave better can be a bad thing? For example, we've always tried to avoid doing that with regard to his behavior in school, since we don't want him to expect to be rewarded for what should be a baseline expectation, you know? Also, does he know what your definition of "too long" IS? I remember when my brother was about 7 or 8, he had NO internal clock. He took some test where he was told he had 1 minute to answer each question and he would flip out and start throwing answers out, because he had no real understanding of how long a minute was. What about a kitchen timer? The old school ones with a dial. "Go brush your teeth and take a shower. I am setting this for XX minutes. I expect you to be done by the time it dings, you can take it with you and have it on the counter in the bathroom to help you budget your time." No punishment of reward there, just a concrete way for him to actually SEE how much time he is taking on these tasks.
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Dec 28, 2012 22:41
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Interestingly, my husband has terrible ADHD and our son has a syndrome which results in more than 90% of patients having ADHD and as of yet he's shown zero signs of it. (No signs of the crippling anxiety that is comorbid with more than 95% of people with Willams Syndrome either).
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Jan 1, 2013 03:07
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hookerbot 5000 posted:Isn't it different in different countries? Maybe it's just one of those things you hear but isn't actually true but I've heard people in the US held their forks in the right hand and knife in the left, and switched hands to cut stuff up. I hear this all the time, but I'm American and no one I know switches hands all the time when they eat. Everyone I know just holds the fork in the left and the knife in the right.
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Jan 6, 2013 22:57
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Konomex posted:What I meant to say was that the only way her head would stay below the indicator line is if her legs stuck out the end of the seat, which won't happen because the actual car seat is in the way. She's almost to the point the seat manufacturers say she needs to be turned around. Here is some information on car seats in Australia. It appears that a convertible seat that does rear facing to at least a year is not so hard to find. Just so you know, my son has a Britax, which apparently is sold as Safe-n-Sound in Australia, and it takes up less space rear facing than his infant capsule did. Also, bend the baby's legs so they don't stick out and hit the actual seatback. http://www.pomsinoz.com/forum/transport-shipping/123214-car-seats-australia-what-you-need-know.html Also, I think that to say most car crashes are frontal and those are most often the driver's fault and since you are a safe driver, it's ok is really willful ignorance. I'm an EMT - do you know how many "safe" drivers I've pulled from vehicles? Here's a clue: an awful lot. Cars crossing over from oncoming traffic into your lane when there's nothing you can do about it: frontal crash. Mechanical failure of the vehicle: frontal crash. Get rear-ended and pushed into another vehicle/tree/wall/road barrier: your rear end crash just became a frontal crash. Dog or small child runs into road, causing you to swerve into the guardrail: frontal crash. People swerve in front of other cars, change lanes without looking, and slam on their brakes all the time. Just because you haven't had it happen to you doesn't mean it can't. Buy the car seat and then in 5 years, go ahead and laugh at how we were silly and overprotective because you didn't get into an accident. Hindsight really is 20/20, but I'd rather have hindsight tell me that I made a good choice in spending some extra money to ensure my child would have been safe in case of an incident that never occurred than to have it tell me that I should have spent it and didn't and as a result my child was harmed.
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Jan 7, 2013 04:44
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We bought a deep cabinet with a locking glass door and then used the hole borer for our drill to make holes in the back. Turned it into our media cabinet, with the stereo, cable box, Playstation, and all our DVDs in it. The remotes still work because it's glass fronted, but the kid can't get to anything. At this point all we have are kid's dvds and Playstation games, we've ripped all the grown-up movies and just put them on a media server. The hard copies are stored in the garage for now.
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Jan 7, 2013 21:36
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FordCQC posted:Personally I don't mind my daughter constantly pulling them out of the entertainment center and putting them back all the time, it's a cute little game. Although I don't have as many games/DVDs as you do, but I love it everytime she grabs that copy of Ken's Rage and brings it over to me. It's the only game she does that with, it's hilarious. I didn't mind at first, when it was just me having to reshelve a few of them them once a day. But then it was like half of them. And then it was 10 times a day...and then he figured out how to open the cases and pull the discs out because OOH SHINY!
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Jan 7, 2013 22:38
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We use Huggies Overnites, they've been successful for us for like 3 years now. They are more absorbent than regular "daytime" diapers. We also occasionally have found that we need to go up a size in the nighttime ones before we do in the daytimes. For instance, he was in size 6 for nighttime for several months before he needed to go up to 6 in daytime. Fionnoula fucked around with this message at 22:39 on Jan 16, 2013 |
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Jan 16, 2013 22:27
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Rythe posted:I think we are using standard little movers huggies right now and we have been using a size up, thinking a bigger diaper will hold more pee. Fisher Price also makes night ones, they actually sell either day time packs, night time packs, or a big box with a bunch of day ones and a smaller number of night ones. I used those for a while, but then the store I was buying them from stopped carrying them which left only Babies R Us as a local supplier for me, and BRU is really overpriced. FWIW, my son is generally a Huggies or Kirkland (Costco brand) kid, Pampers and Luvs have always leaked during the day, but I did get a few packs of the Pampers night ones (Extra Protection, I think they're called) a few times and they seemed to work just as well as the Huggies Overnights - I guess because he doesn't move around so much at night, so the fit around the leg doesn't matter as much.
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Jan 17, 2013 07:25
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bamzilla posted:I really loved the Halo Sleepsacks as mentioned above (with the wrap piece), the Swaddle Pod by Summer Infant and the woombie as my son will not stay swaddled in a blanket. However, I do love the A&A blankets as actual blankets. Yeah, my son wouldn't stay swaddled with any kind of blanket. We were big fans of the Halo Sleep Sacks with the swaddle piece. He was an epic puker though, so we used swaddling blankets as drop cloths.
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Jan 21, 2013 19:41
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We did most of Liam's tummy time with me or my husband laying on our backs and him facedown on our chest. FWIW, he's got a disability and was already under the care of a physical therapist and an pediatric orthopedics specialist at the time, and that is the method they both suggested for us.
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Feb 18, 2013 09:29
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Grab some demitasse spoons. I picked up a 6 pack of them from Ikea for like $2.
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Feb 20, 2013 02:42
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I strung a clothesline in the hallway for art (actually it's 2 clotheslines, one a bit above eye-level and one below that) and put everything up on it with clothespins. When he brings new things home, I pull something off the clothesline and replace it with the new stuff. When anything comes off the slothesline, I offer it to grandparents to keep. If they don't want it, I decide then if it's worth actually keeping it myself or if I'm binning it. I've only kept a few things on a permanent basis, they go in a cardboard art portfolio which currently looks like it will last quite a while, space-wise.
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Feb 21, 2013 00:38
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Rathina posted:Even at home we accumulate a lot of "work" because my kids just love stickers, that we do stickers on construction paper like every single day...and pretty much all of that goes into the trash. Next time I go to JoAnn's I plan on picking up some blank journals/bound drawing books, and I'm going to give one to each kid for all the stickers, that way I'm at least not throwing all my money away. I get all the stickers from the dollar aisles at Joanns/Target or the dollar store. I just have a 3 ring binder. I 3-hole punch printer paper and all his stickers go in there. I started it when he was just an infant with all the stickers from doctor/therapy appointments. He's got millions - he gets one at every therapy appointment and that's 3x per week, plus all his doctors and specialists. The stickers are out of control and I figured if I started that tradition before he was old enough to really have opinions on it, he'd just sort of accept that that's where stickers go, rather than wanting to stick them all over the house and car. So far it's worked out for us!
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Feb 22, 2013 07:56
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rectal cushion posted:Does anyone have experience with kids with hip dysplasia? My daughter was diagnosed today with mild dysplasia in her right hip. We are going to see an orthopedic specialist, but most likely she's going to have to wear a Frejka's pillow for 6 weeks. So it's kind of a bummer, but absolutely not that bad at all - have anyone here been through it? How big of a hassle is it? Any tips or tricks I should know about?
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Mar 7, 2013 21:25
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rangergirl posted:I have two questions. This is my son, he's 6 1/2 months old. Don't forget about vision protection! Get him a decent pair of UVA&B sunglasses and start working on him tolerating them as much as possible. My son and I are both quite pale, we do lots of sunhats, sunglasses (now he's got prescription glasses so he's got Transitions), and UV clothing. I'm not a big fan of sunscreen on him, he's got pretty sensitive skin and has had small reactions in the past.
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Mar 12, 2013 02:10
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GoreJess posted:Any suggestions on baby sunglasses that will actually stay on their heads? If Archer takes after me, he'll need super sun protection. Liam had these and I loved them. http://www.julbousa.com/baby/looping1/ Pricey, but I was very happy with them. They provided great eye protection, there's no right-side up, so I didn't have to mess with them all the time. His ophthalmologist recommended them.
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Mar 12, 2013 19:47
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frenchnewwave posted:What is a lovey? A security object - teddy bear, little blanket, etc.
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Mar 26, 2013 07:52
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hepscat posted:That's called "scripted language" when they repeat phrases like that. My son doesn't have an official autism diagnosis but he is about a year older than yours and those behaviors were enough to qualify him for assistance - he's getting behavior and speech therapy which has made a really big difference. Not being able to answer questions was one of our biggest obstacles. You can use the scripted language to your advantage in something like potty training. Decide on a phrase what will mean "Take me to the bathroom, I have to go!" - in our house that phrase is "Potty please", every single time you take her in there to sit her on the toilet, say the phrase. Attempt to engage her enough so that she will parrot it back. Always say it, always encourage her to say it. It's a verbal cue for her 1) to know what is expected next - i.e. we're heading the to the toilet now, and 2) The repeated use of phrasing under the potty-going circumstance will eventually become her own personal scripted speech for the situation. She will begin to associate the peeing with the saying of the words, it becomes a matter of time before she being initiating the phrase to announce the peeing is about to occur. Alhazred, I couldn't disagree with you more about the use of reinforcers (not rewards) and praise. You seem to be under the impression that if they are used poorly they can be negative and therefore we shouldn't use them at all. There are decades of research into behavioral therapy that show otherwise. Applied Behavioral Analysis (ABA therapy), an evidence based treatment most closely associated with autism but commonly used with other disabilities - which has proven for *years* that praise and reinforcing desired behavior WORKS.
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Mar 26, 2013 18:18
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bamzilla posted:Figured I'd mention this here: Target has a deal where you can get a Graco Nautilus 3-in-1 carseat for $100. http://www.babycheapskate.com/2013/04/10/graco-nautilus-for-less-than-100/ is the info. Just have to print off an in-store coupon (only good in-store). Even without the coupon the seat is $125 on sale right now. It's a great seat. It does NOT rear face so it's more ideal for 2.5-3yrs + but it can convert into a stand-alone booster which is good for much older kids. SO you'll get a lot of life out of it. I picked one up for $106 with tax. They retail for $160. Oh wow, that's a *great* deal! That's the car seat I bought for Liam to use on the schoolbus and I'm thrilled with it. I had planned to get another to replace his Britax Marathon when it expires in 6 months or so - guess I'm upping the timeframe!
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Apr 10, 2013 17:52
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rectal cushion posted:Feedings (with the possibility to record which boob I've used), diapers. Tracking sleep is useful too. Maybe an "other" category to record miscellaneous things like baths, medicine, etc. For extended use, it would be great to add a potty training function. I tracked potty training stuff with pen and paper but I was using my phone as a timer for it and would have loved to have it just be all in one. Before potty training started, I somewhat loosely tracked when he needed diaper changes to give me an idea of the timing for potty breaks. Then once I started training, I tracked: What time for potty break. In each potty break, if there was urine, BM, or no production (didn't go) Accident times (so I could fine tune when to get him to the bathroom better in the future) Once I started seeing a pattern, I started tracking when he was having drinks and it explained the outliers in the pattern. Perhaps a dry-pants check tracker? I never tracked those, but some people might like it.
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Apr 26, 2013 22:20
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kirsty posted:I always had a list of random minor things that I'd want to ask the kid's doctor, so maybe a checklist of typical medical/ developmental questions would be useful. YES. I ended up using a notepad app on my phone to write down questions for the doctors, because I'd have this long list of stuff I wanted to bring up and then I'd get in there and not be able to remember any of it. A checklist would be good, but also would need to have a memo function so you could add your own weird things.
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Apr 27, 2013 18:53
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My son started going to the dentist at 15 months because his syndrome carries with it risk of severe dental issues and we wanted to have as good a picture as possible about what we were looking at long term and develop a plan if necessary. If he were typically developing, we probably wouldn't have taken him until around 3.
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Apr 28, 2013 17:44
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RGBRIOT posted:We're definitely hearing a lot about being able to control what app functions are used/displayed, and its an idea we really like. I'm curious though if you might elaborate for me...what does a really good medical visit screen entail? I'm probably a special case in that my son has a syndrome with it's own guidelines from the AAP. What I'd be interested in is having the ability to put in certain tests that need to be done at a certain time so they don't get missed. Because he's got separate guidelines to go by that pediatricians aren't using on a daily basis, I'm always worried that we're missing some blood or urine test that's supposed to be done at least once a year and something will get missed as a result. For instance, he's supposed to get his urine calcium checked every other year and his blood calcium checked annually. I just realized a month ago that neither had been checked in over 2 years, His hypercalcemia resolved at 2 years old (he's almost 6 now), but it can recur throughout life and can do serious kidney damage, so it needs to be checked periodically. With everything else he's got going on healthwise (cardiac, ortho, etc.), it just slipped everyone's mind to check it. My problem with most apps has always been that it's all very cookie cutter. When you have a kid who doesn't fit into that mold, the app becomes useless pretty quickly. I need more customization, because your standard checklists aren't going to come anywhere near covering his needs. Also, as the parent of a kid who is completely on his own program, I'd appreciate if there were a way to turn OFF standard milestone checks. My kid isn't meeting those milestones, I already know that. It was kind of depressing to have it constantly in my face, especially for the first couple of years when *everything* is all about the milestones. I stopped using the app I had because it got to the point where I no longer needed to worry about scheduling him - I could read his signs well enough, I knew the schedule well enough. I just tapered down using it as its benefit to me wore off. If it had functions that I still wanted to use (like medical stuff or potty training), I'd still be using it, at least periodically.
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May 1, 2013 21:39
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RGBRIOT posted:I thank you for sharing this. I had thought we had pretty much worked our app out of the cookie cutter genre, as it was something from the start we knew we wanted to avoid...but you've shown me that there are definitely considerations we haven't even thought of because we've never been in such a situation that warranted said considerations. I appreciate that, and hope to better understand what sort of other needs your child or other children in similar circumstances would need. I don't think there's really any one guideline. Every disability is different, so everyone is going to need different things. Like for instance, I need to track cardiology and nephrology things more than other stuff - blood tests, urine calcium-creatinine ratios, blood pressures, EKGs, echocardiograms. Other people might be more concerned with endocrinology, or neurology. My kid has Williams Syndrome, which has its own growth chart because as a rule they're small and don't chart on the standard chart at all (we still looked at the standard one because it's easier to get hold of, we just looked to make sure he was following the same curve as other kids...just way below the regular lines). I think it would be completely unrealistic to try to put in a different chart for everyone, so just the ability to toggle things on and off, and to put in your own criteria (and reminders...periodic testing is a pain in the rear end to manually keep track of) would be great. Milestones are great - they exist to help identify kids who may have potential problems. But once the problems have been identified, milestones become pretty meaningless. I just took him for a physical this morning and there's a checklist...there's ALWAYS a checklist. "Is your child doing x, y, z" He's now getting to the point where he's only failing to meet about half of them, but there was a time where I would just draw a line down the NO column without ever even really looking at the paper. It's irrelevant information to me, he's doing *AWESOME* for a kid with Williams Syndrome. A constant comparison to typical kids can actually be harmful because you lose sight of where he actually is when all you can see is where he isn't. Along the lines of the physical...Liam charted at the 20th percentile for weight and 22nd for height on the standard WHO scale today! A year and a half ago, he made it onto the chart for the first time at the 2nd percentile. He's recently (within the last 6 months) started eating grown-up people applesauce and yogurt, so I'm attributing his growth spurt to that. If I could just get him to start eating food that requires chewing instead of stage 2 baby purees, he'll shoot up like a weed! His pediatrician also told us that he no longer considers Liam underweight at all (seriously, I never thought this day would come!). His cardiology reports and most recent blood tests look awesome. The only hitch right now is his blood pressure is high - we're currently unsure of whether that's a case of whitecoat hypertension or if it's a real number. He HATES the sphygmomanometer, so it may be a case of him freaking out whenever they put the cuff on him. "NO ARM SQUISHING! ALL DONE SQUISHING!"
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May 2, 2013 20:42
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Lullabee posted:Plus, I figured you'd be a better group to ask - I'm flying home at the end of this month, alone with my son, about a week after he turns 3 months. I didn't tell his pediatrician at his last visit, because I didn't think it mattered, but some friends make it seem like it does. Since he's on track with everything, we don't have a reason to go back, so won't be seeing the pediatrician until June. Do I need (or should I) call his office to let them know? It's a short trip (6 days 5 nights), and the flights are relatively short with good amounts of layover time in between. I don't see why you would. My son's disabled and has a heart condition. I've never told his pediatrician when we were going out of town. Frankly, it's never occurred to me that I might need to and he's never said anything to that effect when I've mentioned trips after the fact (like our 2 month long road trip across the country and back last summer, or any of the times we've flown back east).
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May 6, 2013 08:37
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iwik posted:Hey Fionnoula, I think I recall you saying that the marbling in Liam's eyes was a distinctive feature of Williams Syndrome, is it generally only found in people with that condition? I know that it's a very typical presentation for people with WS but I'd hesitate to say that WS is the only thing that can cause it. Much like their hallmark heart condition - just because 90% of people who have that specific condition have it because they've got WS, that still means that 10% of patients have it for some other reason. Some people just have awesome looking eyes, I guess 
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May 7, 2013 15:15
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| # ¿ Apr 28, 2024 06:41 |
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Lullabee posted:
I loved this one (although ours was ladybug themed and therefore more awesome). http://www.amazon.com/Swimways-Baby...ywords=Swimways Don't forget the baby sunglasses!
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May 14, 2013 05:59
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