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Hi, OP, I've been following your posts and wish to offer my encouragement. Most people wouldn't even have the capacity to do what you've done so far. Even if they have the will, reading through all of that medical literature and essentially becoming your own wife's therapist... wow... I don't wish to give false hope, but the statistics for recovery may be so low partially because the average person wouldn't have that kind of dedicated helper. Our medical system doesn't have sufficient resources to do what you have done for every person in your wife's situation. The improvements would have been impossible without you. All I mean by this is that I think you are what is giving her the edge over others in the same situation. Please keep us updated. My sincere wishes for her continued improvement.
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Mar 21, 2016 21:48
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FAN OF NICKELBACK posted:You have no idea how hard it is to not turn into a lunatic, to make sure I don't see everything as unquestioningly meaningful. There's a lot of road to left to go, and I'm already afraid I'll break. There may not be real meaning in every improvement that you see, but there will always be real meaning in the love you and your wife have shared with each other. This is evident in your thoughts and actions. Still, maybe there is someone close to you who can help keep you in check, to be sure you look after your own needs as well. I can only imagine how demanding this situation has been on you mentally, emotionally, and even physically.
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Mar 22, 2016 02:46
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FAN OF NICKELBACK posted:we've gotten intentional movement outta both hands, subtle but reviewed by the right people and they exist. no idea how far she can go, but the idea of a not-poor prognosis is floating around mostly due to the fact her body has been hiding her efforts and no one thinks she's been a vegetable this whole time anymore. Amazing news. Your wife is one tough lady. I imagine how discouraging and terrifying it would be to be in her situation, with my own body working against me as I tried to make movements, just to let it be known that I was still in there somewhere. And if there weren't someone so dedicated by her side, maybe no one would have noticed her efforts. I think that would be worst of all. But she has you. Even if she is never your wife in the same way again, you two are still quite a team. Keep us updated. You are in a lot of goons' thoughts.
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Apr 23, 2016 01:14
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Have you considered maybe going to the media with this...? I know it probably is the last thing you would want right now, being in the public spotlight. But you do have such a compelling story. It has the potential to draw attention to your wife's case to enable you to pay for better therapy with the gofundme. Or what if you could catch the attention of someone with the power to influence a hospital or such on your wife's behalf.
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Apr 26, 2016 03:20
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FAN OF NICKELBACK posted:Well I mean my daughter would probably disagree about who's best to have her mom's organs, but she's biased so take it for what it's worth. No kidding. Personally, if my loved one had even a minimal chance of surviving, I wouldn't sacrifice him or her even to save 10 strangers. FAN OF NICKELBACK posted:she just ran a gauntlet of bad news and landed back at a 1 in 4 chance of a full/near-full recovery This is amazing even as a 1 in 4 chance. You deserve encouragement and support, and I hope that you get it.
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May 6, 2016 20:00
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OP, your updates continue to amaze. Hoping for even more progress.
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May 15, 2016 02:07
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FAN OF NICKELBACK posted:One of the reasons I need her to be ok is because I have a ton of zombie jokes that require a certain level of recovery before I won't be a monster for making them Find your motivation where you can! Was wondering if you have tried playing music for her - as long as it isn't too much for her to handle in her current state for some reason.
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May 15, 2016 22:51
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Amazing is the word! Thank you for continuing to share the story of your wife's progress and what you've learned along the way.
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Jun 10, 2016 22:03
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I hope you post the gofundme here, but if not, please PM me as well. Would like to send a few $ your way.
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Jul 5, 2016 22:04
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OP, disregard the naysayers. At the beginning, the odds were terrible, but now there's a legit shot at substantial recovery. I think it would be nonsensical not to take that shot if you can, and I hope this gofundme will help remove the financial limitations.satanic splash-back posted:imagine if your last words to the internet world were "vagina pangs" I could only wish. My last words on the internet will probably be something like "financial limitations". (God, if you're reading this, I'm not tempting you, OK?)
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Jul 16, 2016 01:27
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The person that he knew is almost certainly gone, but there is a greater than zero chance that OP's wife is going to regain some level of functionality. Unless he's been lying to us, she isn't a vegetable and she hasn't plateaued. She's young and she potentially has a chance of enjoying life again. Why so many people are shooting down his efforts, as if this were a Terri Schiavo case beyond all hope, I don't know. OP knows he's not going to get back the woman he fell in love with, and he's made this clear. I wouldn't push the question regarding remarriage, though. For all intents and purposes his wife just died less than a year ago and he's brokenhearted, in heavy mourning. His little girl can have other female role models... aunts, grandmothers, cousins, family friends. (OP - I've donated to your cause and I hope others do the same)
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Jul 30, 2016 22:45
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EugeneJ posted:There's still a possibility this is a scam. Sure, but there are a lot of easier/safer ways to make money dishonestly than doing lots of brain damage research plus putting your own identity out there where thousands of people can see it.
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Jul 31, 2016 17:51
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FAN OF NICKELBACK posted:As an aside she's been super responsive all morning, never falling to look at a thing on request within seconds and is pretty focused on people coming and going. Massively reduced spastic movement too. Yeah, who knows how long she was feeling EXTRA crappy on top of everything else she's already dealing with. No wonder she didn't feel like doing anything while the infection was raging. Glad this was detected and treated.
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Aug 4, 2016 03:44
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That's awesome that your wife was able to experience such an improvement and that you were there to share her joy. Congrats on your tinnitus thing, too. Guess that's a bonus!
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Aug 17, 2016 04:10
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You guys have ventured into uncharted territory and I can't imagine how surreal it must be to be living it. Thanks for continuing to share your story.
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Aug 20, 2016 18:37
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Avshalom posted:apparently some toilets in europe have little shelves for the poo to land so you can take a good hard look at your poo before you flush it and anyway gbs is the poo shelf mods please rename this forum to The Poo Shelf
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Aug 23, 2016 15:08
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Yeah, don't guilt yourself too much over letting your daughter stay with caring relatives for a while. A lot of kids stay with relatives for reasons far less significant than what you're going through. And there is always Skype or whatever so you don't have to be a stranger to your daughter even though you're apart distance-wise. Eventually, she should be able to understand the gravity of what you were dealing with and that spending time away from her was something you did out of necessity. Kids with parents in the military still love their moms and dads and it's arguable that you got drafted into this position.
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Aug 26, 2016 03:09
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satanic splash-back posted:i hope you play some nickelback for your wife I know this is a comedy forum and you're entitled to make jokes, but man... that's really dark
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Aug 26, 2016 08:40
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Man, what you're going through makes caring for a newborn baby a breeze in comparison. I suggest seeking help through a church because they should help you (should... not that they necessarily will) regardless of your financial status. You are handling this all well considering, but constant sleep deprivation is a form of torture, or torture-lite anyway. I think they've used it at Guantanamo.
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Sep 6, 2016 18:31
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RandomPauI posted:This is a crazy thought. Have you heard of the app nextdoor? Could you use it, local churches, or a related service to find people in the area willing to help out with errands, etc. on the cheap? Also... how about modifying the gofundme for the purpose of funding a part-time caregiver, so you can at least sleep? This is a perfectly legitimate reason to ask for help.
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Sep 7, 2016 02:54
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If she's able to laugh appropriately at a stand-up routine, well, that requires a certain level of language comprehension and thought to understand. It seems indicative that she has more going on inside her mind than she is able to convey due to her physical limitations. Although there is the possibility she was just laughing along with the audience and didn't really understand the jokes. This might be tested by putting on something funny that doesn't have an audience or laugh track, I suppose.
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Sep 7, 2016 10:12
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a hole-y ghost posted:Unless it was Jeff Dunham If she doesn't laugh at Jeff Dunham, then that would be a positive sign.
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Sep 8, 2016 03:57
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Recoome posted:lmao what the gently caress is this even Without turning this into a story about my own life - this has been my observation as well. Watch a medical professional try to deal with something that isn't by the books. There doesn't seem to be problem solving going on, just trying to follow a flow chart of common issues, like tech support would do. Edit: Maybe if you're lucky you find a doctor who cares AND has the time to work with you on solving the problem, but I don't think this happens much. It might help to be a billionaire or someone "important". Most doctors have too many other patients to see to spend more than 15 minutes making perfunctory observations. green chicken feet fucked around with this message at 11:47 on Sep 10, 2016 |
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Sep 10, 2016 11:35
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Most doctors certainly have the innate ability and work ethic to be able to resolve difficult health issues. I think it's mostly a combination of lack of time plus, as Arkanomen mentioned, possibility of lawsuits, that prevents them from trying more creative approaches, leaving us with a tech support style of approach. (although instead of being able to talk to a manager, you will get bumped around from specialist to specialist) When things are pretty cut and dry, the system works fine, but more unusual cases can be SOL.
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Sep 10, 2016 12:49
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