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adventure in the sandbox
Nov 24, 2005



Things change


wren posted:

I feel like I'm finding my personality again. I'm ready to live with a future now.
Wren, I am so happy that you feel this way. The word that comes to mind is "beautiful."

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adventure in the sandbox
Nov 24, 2005



Things change


Dick Trauma posted:

They always want to have something positive to say even if it's mind bendingly inappropriate.

This is very true. I am dealing with a possible cancer situation ("it's either an infection or testicular cancer, here is an Rx for antibiotics ttyl" - way to scare the gently caress out of someone, you awful terrible doctor who isn't available for a follow-up appointment) with a loved one. He was telling me he is scared, and like many I wanted to say something supportive and positive.

Instead I kept my mouth shut and just gave him a hug.


I want to hug everyone in this thread.

adventure in the sandbox
Nov 24, 2005



Things change


adventure in the sandbox posted:

it's either an infection or testicular cancer

It is cancer. Surgery is scheduled for Monday. Its been a stressful week.

adventure in the sandbox
Nov 24, 2005



Things change


wren posted:

Adventure, I've been thinking about you. I know you're in a whirlwind right now, I wish you the best. There are great people here if you have questions.
Thank you so much wren. Everyone here in the "real world" is very supportive and confident about the outcome. Its been so awful to see my husband in such a state. The GP he has been seeing broke the news in a very insensitive way, so even with googling we had a few days of tears and depression.

We went to the ER earlier this week because he found a swollen lymph node and understandably jumped to the conclusion anyone with cancer would. We saw a resident who casually told us that he thinks it could be lymphoma, then exited the room. We looked at each other and laughed in disbelief, from the stress, because this isn't real and doesn't happen to people in our world. I'm sure its not lymphoma, there are no symptoms. The resident just thinks he is Dr. House.


quote:

I hope everyone is going well. My vacation is after next week, I counted wrong. I'm going to try to send a gift to the cyberknife team for thanks.

I want to get back to creative stuff.

I wish I had noted down the names of the 2 great doctors we saw in the ER on trips before we saw Dr. ResidentHouse. I want to send them thank-you cards because their words made such a difference to us.

Will you post some of your creative things here wren?

adventure in the sandbox
Nov 24, 2005



Things change


Uranium 235 posted:

The lack of symptoms does not mean it can't be lymphoma. It is not uncommon at all for lymphoma patients to present with nothing more than a painless palpable mass. Only about one third of Hodgkin's lymphoma patients present with B symptoms (unexplained fevers, drenching night sweats, and significant weight loss). For Non-Hodgkin's lymphoma patients, only about 10-15% present with B symptoms.

I'm not trying to be alarming, just pointing out that the resident did at least mention a real possibility. There's no reason to jump to the conclusion that swollen lymph node = lymphoma, but generally speaking, you shouldn't rule out lymphoma as a possibility just because there are no symptoms aside from a swollen lymph node.

The resident did tell us that lymphoma could result in the testicular lump/mass. I am irritated at the resident because it seems bizarre to tell someone they may have lymphoma then walk away, no discussion, no reassuring words, nothing. The patient had been in for ativan because of panic attacks a few days ago, I would think sensitivity to the patient's stress level is called for.

I am interested if lymphoma is actually a possibility with the following timeline/symptoms. To be fair to the resident, the first doctor didn't order the correct bloodwork so we don't actually know if it is testicular cancer.
Around the 1st of March, pain in L testicle. A small lump developed within 2 days of pain, currently the lump is 12mm across and does not seem to be growing. There are no other symptoms (anxiety, headaches, stomach ache, etc are due to being told he has cancer I think). The resident took a sample of the swollen lymph node with a needle and didn't find anything unusual - this was Tuesday the 27th.

adventure in the sandbox
Nov 24, 2005



Things change


wren posted:

I will help as many people as I can. I have never felt so loved when my whole life I felt so worthless. I feel like I'm giving up too early but I'm not giving up. I'm just continuing. I can't do more. I go back and forth on accepting that I'm doing everything within reason. I am. Anyone who thinks otherwise hopefully will understand what I'm saying before they hurt anyone.

I have applied to med school and am waiting on the outcome. Honestly I don't feel confident about the results but I will try again because people NEED good kind doctors and I know I can be one. If that doesn't work out, maybe I will get a Masters in counselling. I also want to help as many people as I can.

Wren, its been only a month for us and I am feeling the tip of the iceberg about what you say, "just continuing." Its all anyone can do. If it matters, I've been lurking this thread and even with all the ups and downs you have experienced, I never thought you would give up. You are too strong and determined.

adventure in the sandbox
Nov 24, 2005



Things change


wren posted:

I hope your journey in this is clear and straight. Honestly, if you get the survey call about the ER visit carefully describe the guy who did the wrongs and the rights. My sister said, as a doctor, they take that stuff very seriously. The times I lodged complaints the hellfire was fast and merciless. If only so no one having a worse day won't blow their brains out. My biggest complaint removed everyone I mentioned in a few months and totally changed the atmosphere. I hated that place before it changed.

I don't know how I forgot to reply to this! I am Canadian and I have never had a survey call about anything medical, but I like the sound of it. Patients too often go home and grumble and poor care or doctor-patient interactions. Its hard to complain when you don't know who to contact. I need to talk to someone high-up at the hospital here because they have this TV in the ER waiting room, it has education slides and advertising. Well, we are sitting there because the kindest thing the GP said to my spouse was "don't go thinking you are going to die," so of course he thinks he only has months left and has been having panic attacks and needed a prescription for ativan as well as pain medication. We are looking at this stupid TV because it was a slow ER day and nothing entertaining was happening. The first slide is about testicular cancer. The next one was about how men often die in workplace accidents. Then they get liver disease. Then they get high cholesterol. Next you should buy life insurance. Then more stuff about men dying. We laughed, but it wasn't funny. People don't go to the ER because they need to learn about all the ways men can die. People in the ER shouldn't be told about how men die all the time.

I'm so happy that they took your complaint seriously! A rude health care professional can make patients do crazy things. If my spouse lived alone he would have been totally hosed the day he was diagnosed by his weird, awkward GP. Who knows what he would have done, self-mutilation to force surgery to remove the affected testicle, having a complete mental breakdown, I don't know. Suicide maybe. This is terrifying enough, without having lovely doctors and nurses to make people feel even worse.


Uranium 235 posted:

He didn't even stay to give you the opportunity to ask questions? That's ridiculous.

May I ask what kinds of diagnostic tests have been done?

edit: By the way good luck on your application. I'm not in med school but I am a student in a profession within the sphere of radiation oncology and it has been extremely rewarding so far. I think counseling would also be a good and rewarding career path. One of my favorite series of lectures was given by a counselor who works at our institution. My career path will allow me to have a direct role in patient care but everything I do will be behind the scenes, and it was very nice to learn about the patients as people. Incidentally, that's one of the reasons I read and post in this thread regularly.

He came back after consulting with another doctor and said "Lymphoma is very curable in young people like yourself," didn't talk further about what he saw from the sample he took from the swollen node, and said we could go. He was very personable and friendly but his professional bedside manner left something to be desired.

As for tests, there was an ultrasound that revealed a solid mass, general bloodwork that didn't include checking for the 3 markers (GP is a bit of a doofus I guess), chest X-ray clear as of a week and a half ago, waiting on results of bloodwork that will check the tumor markers, and Thursday & Friday last week were the CAT scans from chin to pelvis. I/O surgery is first thing tomorrow morning, then its another ~2 weeks for the pathology results.

Xarg and Uranium, thank you :) I have read some of the megathread and I have spent a lot of time on the premed101 forums which taught me a ton of helpful information, but it wasn't helping my stress level. I know what to do, keep volunteering in areas I am interested in, practice MMI but not so much that its rehearsed, maybe rewrite the MCAT, maybe do a Masters so I can get a better academic reference. I interviewed last year and was unsuccessful and I took it really hard. The premed101 community is very supportive but also very obsessive. I don't need that, I make myself crazy enough as is. I'm more zen this time around and its for the best, I would rather be here taking time off work to support him through this than trying to study and pass exams.

adventure in the sandbox
Nov 24, 2005



Things change


We saw the oncologist today. Pure yolk sac tumor. Unfortunately there seems to be lab error, since two of the bloodwork tumor markers came back as 0. We still don't know where we are. The doctor seemed super irritated at those two 0's.

The doctor also started talking about flying Matt* down to the provincial cancer centre to start chemo tomorrow, since they won't be able to do it here until Tuesday due to the long weekend. I think Matt and my hearts stopped - what does that mean?! It can't even wait 5 days?!?! TC support forums have stories of people waiting months after orchiectomy for chemo, Matt's I/O was 3 days ago!

The doctor gets on the phone with a colleague, I believe the director of said provincial cancer centre. They decide that IV chemo can wait until Tuesday, in the meantime Matt can take oral chemo pills over the weekend.

CT results confirm metastasis to lymph nodes in pelvis and neck. Doctor said the neck nodes shouldn't hurt, but they do. Just as bad as the testicle, according to Matt. A week ago, the nodes in CT were 1.4 cm, now the doctor says they are ~3 cm. I liked this doctor, when he was on the phone with his colleague he was talking about how outdated this week-old CT was. Again, TC support forums have doctors basing treatment off of month-old CTs.

IV chemo start Tuesday.



* names have been changed to protect the innocent. Matt is my significant other, the one with the diagnosis.

adventure in the sandbox
Nov 24, 2005



Things change


wren posted:

it is also good you can get started and it is immediately.

Humanoid Female posted:

"it's possible to not have to wait 5 days or months or whatever, so hey, let's do it now."

Nannypea posted:

ditto


Thank you wren and HF. Matt and I had this very discussion on the way home. Its good to see that other people are drawing the same conclusion :) Why would the doctor not advocate for fast treatment. He and the director colleague guy seem to be really friendly, our oncologist may have the inside scoop on the provincial centre's schedule. The urologist and this oncologist seem really great and proactive.

Edit: I don't think I mentioned, I LOVE the urologist we saw. He never used the "c" word, he only said mass, tumor, lump. I found that very respectful and sensitive.

As Canadians, we hear a lot about how hospital and ER wait times are crazy, but the people who actually need urgent care get what they need, and sometimes more urgently than they think is necessary. And all the medical people are very nice when you tell them why you are at the hospital. This care is what medicine should provide to all patients.

Nannypea, thats good to hear that more current scans are normal. I've never been involved with cancer treatment, but any other diagnostic tests needed by friends and family are scheduled for weeks later, and looked at by doctors in another week or so. It makes sense that cancer treatment is a bit different!

Edit: Matt is CRAZY, like totally loving crazy, about researching anything he is interested in. I would just trust the doctors to give me treatment, I know my level of obsession and the internet wouldn't be helpful to me. I couldn't keep Matt away from the computer at first :( Luckily TC has a ton of good stories.

wren, I don't have pm's but my email is .

Bellakitty posted:

I'm sending positive thoughts

Thank you :) I had to give him a name, saying he, him, my partner etc was getting silly.

adventure in the sandbox
Nov 24, 2005



Things change


Today completes Day 5 of chemo, now Day 8 & 15, then Cycle 2 starts on Day 22. Matt had to get a PICC today because the IV in his hand wasn't able to last all week. The ladies in IV Therapy were wonderful, but poor Matt. He had an extremely traumatic experience as a small child getting a cutdown IV, so he was scared shitless. The PICC was booked for Monday, but his hand just wasn't happy with the IV and the nurse wasn't able to start another in either hand. Yesterday they needed more bloodwork, and it took 6 tries by 3 different lab techs before they were able to get a sample.

I'm very happy for the PICC. Its such a disgustingly helpless feeling just watching a loved one in pain and being completely unable to help. Matt is very stoic and has a high pain tolerance but he and his veins couldn't take much more. At least now he won't need any more pokes. At least there's that.

I still can't believe this is happening. Its surreal.

adventure in the sandbox
Nov 24, 2005



Things change


Zwabu posted:

When the diagnosis is not known, it makes more sense to me to use the more neutral terms like mass, tumor, lump.
I think this was why the urologist never said "cancer". No bloodwork for tumor markers had been done, no biopsy, only an ultrasound that showed a solid mass. Matt used the word cancer at the appointment and it seemed to me that the doctor knew that we knew that Matt had cancer, and the whole time we were talking about cancer even though we didn't use the c-word. Does that make sense? (Edit: I asked Matt, and it was him and not the doctor who first said "cancer" so ignore this next bit: I actually think he may have said it was cancer at the beginning of the appointment (maybe it was Matt??), either it is cancer or we are going to proceed as if it is cancer even though the bloodwork for tumor markers isn't back yet. Sorry, everything is a blur.)

I was also still irritated at the GP who told Matt "don't start thinking you are going to die" and the rest of that abrupt conversation. Having a different doctor choose his words so carefully makes dealing with this much easier..

adventure in the sandbox
Nov 24, 2005



Things change


Thanks wren. I've been thinking about you and the others here too, I hope everyone is doing as well as they can.

I just filled out the registration for cancerchat.ca as a caregiver. I think communicating online will be better for me because I can see myself going into emotional breakdown mode if it was a face-to-face support group.

adventure in the sandbox
Nov 24, 2005



Things change


wren posted:

I don't think I could take on the additional sadness. That might make me terribly selfish but, I don't have anything left to help.
Take care of yourself. Don't worry about anyone else. Its not selfish.

quote:

One hospital referred me to a place years ago that was all over the news the week after my stay for a huge bedbug infestation. I really need to find a place I can feel is clean.
Oh god this reminds me. I work in community living, a nonprofit assisting people with developmental disabilities. One of my clients, I manage the home he lives in, had to travel down to a larger city for a specialist appointment. The Ministry arranges everything for people on income assistance. The staff who accompanied him got bedbug bites :( At least she didn't infest her house. I went on the second trip and they sent us to a nice hotel because we bitched so much.

quote:

I'm tired of being sick. I'm tired of watching my body shut down. I'm tired of being an ugly sack of powerless poo poo waiting for the dice to finally gently caress me. Everyone can breathe their sigh of relief that it was my fault and this is a just world. Children die every day in this just world, I would have been a bad wasteful person anyway.
You are not ugly. You are insightful and strong. This is not your fault.


We saw the urologist today. He was happy with the incision and how the area is healing. This time he said cancer repeatedly and his bedside manner was still excellent. But Matt feels like poo poo. It was Day 8 this afternoon, and now at night he says his bones feel like glass and all he did was sleep all weekend. I bring him iced tea and ginger ale and sit beside him. I thought chemo was going pretty well for him but now he feels like poo poo.

I'm going for lunch with a friend tomorrow. She lives 9 hours away and is in town visiting. She doesn't know about Matt's diagnosis. This gal is very self-centred, I wonder how she will spin this so its about her.

adventure in the sandbox
Nov 24, 2005



Things change


I wish you a very happy birthday, wren!!

adventure in the sandbox
Nov 24, 2005



Things change


wren, every time you post I perk up, because no matter what you have to say, it is worthwhile for me to read. Your relationship with your husband is so goddamn beautiful.

Nannypea, that event sounds pretty cool. I'm glad it benefitted you. Its Relay for Life coming up quickly but I'm not involved. I'll probably write a cheque to a friend's donation thingy. Next year I will be doing my own run for Matt and everyone else who has to go through this bullshit :)



So I must be more stressed out/anxious/depressed than I thought. I was taking pride in how well I was dealing with this: looking for solutions, not dwelling on the "what ifs", that sort of thing. Not things that are completely out of reach, more things like "what can Matt eat that he will find appetizing, not upset his stomach, not give heartburn?" and "lets distract Matt so he's not constantly checking his pulse and giving himself a panic attack." But I am completely unmotivated for anything that does not directly benefit Matt. I just don't care about anything. If I make myself do things, its nice to have that sense of accomplishment afterwards but I only am doing housework. Nothing extra, nothing for myself. The weather is nice, it would be good to take the dogs out and go for a jog. Or... I could just stay home and sit around as Matt dozes in discomfort on the couch. I could take my camera to the park for an hour and take pictures of birds. Or... sit around at home doing nothing. Drawing or painting? Nope, sit around doing nothing. Start stripping/repainting the end tables that I was so excited about on the weekend? Nope, its Day 3 of chemo and Matt feels like poo poo, I better just sit around and do nothing.

I don't feel sorry for myself. I just feel so apathetic.

adventure in the sandbox
Nov 24, 2005



Things change


Nannypea posted:

migraines
Eeeesh. No advice here. My uncle occasionally gets migraines; I hope you can get meds that will help.


wren posted:

a lot of people don't want cancer survivors like me, that have years of trying. I keep convincing myself that isn't true but all the evidence is there. Live or die, just gently caress off in between.
This is such an ugly thought but I understand. There is this vibe that people with cancer should fight and be brave and survive, but they shouldn't make anyone uncomfortable with the messy side of their treatment. They should just be strong and everyone should admire them. No one should have to feel sorry or sad or depressed.

Reality is harsher.

quote:



I made the second one first but didn't want to leave it like that. The fishes in the other one are because the chemo is marine derived.

I'm a lovely loving artist

I really like this and you are not a lovely artist. I see a lot of emotion in your work.

I first thought it was the world infusing. Space and the ocean, two unfathomable parts of the world. To me space and the ocean are unknowable but spur me toward learning, are awe-inspiring, make me feel connected to the universe. Things and places I can never be truly part of. The thought of those things infusing during treatment is very beautiful to me.

adventure in the sandbox
Nov 24, 2005



Things change


Nannypea posted:

FYI:
If you wondering why we're all a little more vocal and upset than usual just wander on over to this thread:
Mother just diagnosed with brain cancer, I'm on the other side of the world http://forums.somethingawful.com/showthread.php?threadid=3483400

This is guy is a selfish rear end in a top hat but at the same time he's bringing to light all our fears.

I lurk that thread but I am not posting. That guy pisses me off.


Hooooly poo poo. Matt is napping on the couch and he just poked his head up. I asked how he was, and he started babbling some nonsense about "taking two trips to get there naturally." WTF..... I got him to repeat it, yep pretty much the same thing. A third time? Now he's awake, apparently he was making a joke about a dream he just had??? Holy poo poo dude don't do that. I don't know anything about your weird dream. You've been having weird panic/anxiety-like symptoms for 2 days, heart palpitations, and your PICC insertion area is bleeding, bruised and maybe swollen, and your are all sweaty from your nap.

He scared me :(

adventure in the sandbox
Nov 24, 2005



Things change


Hoover Dam posted:

Holy poo poo. That's just stunning.

Never stop telling your story.

Agreed!

Matt is doing ok. Going through my posts, I didn't say but he developed a blood clot a couple of weeks ago. I believe at the brachial vein? All along the picc and under the collarbone. His left arm swelled right up. He was on nadroparin shots for a few days until his INR got to between 2-3, he hit 3.6. He was on just warfarin pills but lo and behold, the clot progressed and as of Thursday he is back on shots! The doctors, pharmacists and nurses are all really confused because his INR was actually higher than they wanted. He will be on shots for 1-3 months. I did his shot today with the nurse in IV therapy. Matt says I did well, he didn't even feel it going in but I bottomed out because I was determined to get it completely in. He said the nurses who insert the needle forcefully do it best, so I took his advice. Sorry honey, at least I've got lots of practice ahead.

Nadroparin makes him feel like poo poo. Its almost as bad as chemo, and he's got months of this? Its getting ridiculous. Everything has to have minor but pain in the rear end complications when it comes to Matt. He never used to be like this! Its hard for him to be the needy partner, and of course going through chemo, blood clots, whatever.

In other news, I made a loaf of "artisan bread" at midnight last night and it turned out awesome. No kneading!


Nannypea, I hope your headaches go away :(

adventure in the sandbox
Nov 24, 2005



Things change


wren posted:

Sorry to just lay that out, I learner some stuff later than I should have.

I'll take any knowledge you can share! Thanks wren.

Eden posted:

I'm sorry for how hard this must be for you (as well as Matt, of course), but as a nurse I just wanted to say that doing it kind of hard and fast like throwing a dart seems to make the majority of people happiest. I've always felt bad at the apparent intensity of it but I think that's what makes it hurt the least :)

The second and third time I did the injection I did it like a gentle dart and it went fine. He said he didn't feel it go in, but injecting the liquid hurt. My technique's getting better :) But he still feels like absolute poo poo :(


I wish someone would've warned us of the cost of Fragmin. We're lucky I signed up for medical at work, all for Matt's sake (before diagnosis). I didn't have to pay since my plan is pretty good, but Matt's medical plan reimburses drug costs. Not everyone has $1200 ready when they go to pick up a prescription.

adventure in the sandbox
Nov 24, 2005



Things change


ExoticCorpuscle posted:

Read the fine print of your policy. Often they will reimburse much less if the prescription is written for less than 90 days. Another way around it is to get it set up for mail order through your prescription plan.

One of Wren's prescriptions was costing $250 a month, got the Dr. to write it for 90-day and filled it at CVS (our plan's prescription provider) and it costs $30 for three months.

They're trying to cut the cost of repeated administration tasks by getting you to go mail order or lengthen the time frame for the scripts. Unfortunately that doesn't make as much money for your pharmacy, so at the corporate level they do not go out of their way to tell you what is going on.

These policies are disgusting, and I will definitely be phoning my policy provider. Thank you for the information. I just checked the pharmacy label, and Matt's prescription was only for one month.


Zwabu and Regence posted:

tenting up the skin

That's what the nurses showed me to do, one actually said "pinch an inch." Matt looked up how to give subcutaneous injections, and the way we are doing it now is to ice down his belly, tent skin & insert assertively but inject over 30 seconds, and slowly withdraw the needle. This seems to drastically decrease bruising and helps lessen pain, but 2 days ago I hit something painful. Overall, this ice & go slow method seems to work for Matt.


wren posted:

I saw a forum's poster pushing a long disproven "cure" for the subject at hand. That made a day I have struggled through that much darker. My psychiatrist, I think offhand and referring to something else asked if he would be seeing me again. I am completely awash in indecisiveness. I want nothing more than to live or at least not to know the time and quality of my death--which is pretty obvious if this context holds out. I'm not interested in arguing that, it seems to undermine my situation. I could get hit by a bus, but saying that assumes a lot about my intelligence.

Ugh. People are so ignorant.

I don't envy your psychiatrist, a comment that another client wouldn't even bat an eye at can and will have a huge effect on another person. I just want to bake you chocolate chip cookies and make you a nice cup of tea wren :glomp:


Poor Matt almost had a meltdown on Monday. We were told 3 rounds of chemo, then assessment. Monday was his last day. The nurse comes over and hands him an appointment card that has a schedule for another round of chemo. Matt just stares at the card, he went completely rigid and silent. I told the nurse that we were expecting three rounds then CAT scans, so she went off and looked into it. I am trying to reassure Matt that its just a mistake, we were told, after all, that it could be 2-4 rounds, somehow they didn't see that there is are CATs next week, blah blah. He's just sitting their with this weird panicked look on his face. The nurse comes back, it was just a mistake. Phew.

I did join the online support group for caregivers, but I don't feel like I belong. Everyone else's family member or spouse is more serious than Matt. I think I'll talk to the facilitator and maybe drop out.

adventure in the sandbox
Nov 24, 2005



Things change


Matt's CATs came back clear. He has scans again in 3 and 6 months to monitor for teratomas.

Phew.

adventure in the sandbox
Nov 24, 2005



Things change


I sure am! I had a feeling, and I never let myself have "feelings" about things, but its so good hearing it for real. It was great sitting waiting for the doctor, the nurses and receptionist kept walking by and smiling, telling him "it'll be ok". The receptionist in particular calls herself his second mum, she was just bursting to tell him but had to wait for the doctor.

I love everyone in our cancer clinic :)

adventure in the sandbox
Nov 24, 2005



Things change


I hope you are doing better, wren.

adventure in the sandbox
Nov 24, 2005



Things change


Buergermeister posted:

Very sorry to hear that. I really don't want to be the first one to mention this, but: have you thought about maybe stopping the treatments and rather spending your remaining time without the side effects of drugs that are, let's face it, very unlikely to do anything? I admire your hope and I fully understand how it would feel like "giving up", let's just say that this would be a very respectable decision to make...

My spouse had one of the most curable types of cancer. They don't even talk about remission, its "cure" for his type. During chemo he thought about some worst-case scenarios, cancer coming back or a secondary cancer, and he thought about not accepting further treatment. I think any person with a chronic/challenging/whatever condition thinks about these things.

I don't think its really appropriate for you to come in here, especially now, and ask wren that question :/ What are you trying to accomplish? Does she really seem like the type to stick her fingers in here ears and go "lalala"?

adventure in the sandbox
Nov 24, 2005



Things change


Matt and I have been thinking of you, wren.

adventure in the sandbox
Nov 24, 2005



Things change


I'm thinking of you, wren.

By the way, I love your avatar. They are such cute birds :3:

adventure in the sandbox
Nov 24, 2005



Things change


You are amazing, wren. You are strength and grace.

adventure in the sandbox
Nov 24, 2005



Things change


I have such a visceral reaction of disgust to cancer and what people go through because of cancer. It is like looking at maggots or rotting food, the feeling I get.

adventure in the sandbox
Nov 24, 2005



Things change


You are both in my thoughts.

adventure in the sandbox
Nov 24, 2005



Things change


Your words are beautiful, EC. I know they reflect the beauty of Wren's being. You are both in my thoughts tonight.


I am applying for a cancer care coordinator job tomorrow. I am thinking of my family and friends, Matt, everyone in this thread who has had to fight cancer, but especially Wren. Her eloquence and openness has especially touched me. There is just something about how she communicates that just shot right to my heart.

I hope I get the job.

adventure in the sandbox
Nov 24, 2005



Things change


My condolences. She will not be forgotten.

adventure in the sandbox
Nov 24, 2005



Things change


I would love a shirt with a wren design. Echoing the sentiments to take your time. I also had the idea of labour/cost + markup intended for a donation to wherever you feel is most appropriate. Or you can ask buyers to donate $5 or $10 to the Sarcoma Foundation or Heifer International. I

adventure in the sandbox
Nov 24, 2005



Things change


You and your family are in my thoughts, Transmogrifier.

adventure in the sandbox
Nov 24, 2005



Things change


Grayly Squirrel posted:


They won't know if its spread to the rest of my body until they run blood tests and do chest and abdominal scans. I've suffered from unexplained back pain from a while. I'm scared shitless.

My spouse is 4 months out of chemo for testicular cancer, yolk sac type. He had metastases in the lymph nodes of his neck and abdomen. I could have him email you if you'd like, he isn't on SA.

Google "tc-cancer forums" - that will be a great resource and source of support. My spouse is on those forums, I'm sure if you post there he will pm you.

My thoughts are with you. I don't have pms but feel free to email me at melissaj9 (at) gmail.com.

adventure in the sandbox
Nov 24, 2005



Things change


Grayly Squirrel posted:


I'm feeling better. The initial diagnosis was quite a shock. But it looks like I caught this early. :unsmith:


Awesome!!! TC is often treated simply with surgery, fingers crossed that its all you need. Stock up on video games and frozen peas :)

adventure in the sandbox
Nov 24, 2005



Things change


Nannypea posted:


I recommend looking into NeuticlesŪ

If not, I have a very authoritative source that says things will "centralize" if you choose the uniball route :D

Edited to add spoilers because joking about the result of surgery may not be actually funny if you aren't 6 months out :/ Grayly Squirrel, I laugh at everything so please don't feel I am poking fun.

adventure in the sandbox
Nov 24, 2005



Things change


Dick Trauma posted:

Here's wishing for quick treatment and quick recovery.

Seconding this. :glomp:

adventure in the sandbox
Nov 24, 2005



Things change


Matt had three rounds of BEP. He had his 6 months scans just before Christmas :) He found Gatorade, iced tea (I drink mine blander, Matt likes his really sweet and strong but found my style more refreshing), graham crackers, turkey burger patties, ginger candies helpful. And on good days, eat all the food! We ate Chinese food and Subway all weekend on weeks 2 and 3.

During round 2 he developed incredibly intense temporary bone pain in his collarbones. He thought he was dying it was so bad. Turns out, there is a very simple way to prevent this: Benadryl + T3s. The medical folks at our cancer clinic had no idea that bone pain could be a side effect of BEP; Matt researched it and found the treatment online. The nurses kind of shrugged and ok'd the Benadryl + T3 treatment. Maybe run this by your pharmacist to be safe? I don't want anyone else to go through that much pain :(

adventure in the sandbox
Nov 24, 2005



Things change


Nannypea posted:

gently caress gently caress gently caress CANCER!!!!!

Christ. Unbelievable. My heart rate went up when I read your post because I was so incredibly pissed off. But now I'm trying for positive thoughts.


ExoticCorpuscle posted:

5 months. Doing OK. Wren's sister's family joined mine for Thanksgiving but the crap weather kept them from joining us for Christmas. It looks like the relationships are going to stick, though. This is a good thing. Her niece and nephew will get to experience extended family, and she thought that was important.

Still occasionally fighting the good fight and calling out the homeopaths and the quacks and their ilk.

Oh good :3:

Battling with homeopaths and quacks, yep me too. A high school friend on my FB posted some chain mail thing about how diet and positive thinking will prevent and cure cancer. Yep, if you have cancer its apparently ok to refuse chemo and radiation because this healthy diet plan thing will totally work!!! I had to comment. Comment is such a mild word. Its not just a "different opinion" as she says, its life or loving death for the vast majority of people with cancer. Spreading ignorance because people don't understand physiology and science and the biology of cancer will kill people. And blaming cancer on a lovely diet is so loving dumb. What about Matt? He never had junk or crappy food as a kid. We eat mainly organic when we can, lots of veggies/whole grains, minimal meat and only wild game for red meat and poultry with wild-caught fish for protein. Yeah cancer is totally a result of a bad diet, not just lovely loving luck.



I have volunteered to be the chair of the Luminary portion of my city's Relay for Life. We host the only 24-hour relay in Canada, and we are the #2 fundraiser in Canada, behind a city with ~50,000 more people. I am very proud to be part of this event, especially such an important component of the event. I am thinking of my friends and family, the medical staff we have interacted with who genuinely cared, and everyone who has posted in this thread.

Good thoughts to everyone here.

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adventure in the sandbox
Nov 24, 2005



Things change


Matt got the all-clear for the 6 month follow-up. There is some lung scarring but currently 0 cancer so I am over the moon happy. The doctor (a new one every time because they all want to talk to him) said that they may make a case study about him.


Grayly Squirrel posted:

Onc suspects its related to my psoriasis.

Matt also has psoriasis, luckily he wasn't having any funky reactions to chemo. BEP knocked it right out so he didn't have to deal with itching and that crap. But now its back and seems to have spread :/ Sending positive thoughts.



Chickalicious posted:

gently caress the world.

Positive thoughts to you too :glomp: