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hailthefish
Oct 24, 2010

Zzulu posted:

I could do medicine, if I wanted to. All I need is wikipedia anyway

I got my medical degree from GBS University.

Drink her piss and you'll know if she's getting better.


She's not.

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LT56
Sep 9, 2016

by Smythe

Zzulu posted:

I could do medicine, if I wanted to. All I need is wikipedia anyway

And 10 years of medical residency. And a work ethic like a machine. And countless other real qualities that 99% of the population can't even dream of having like being good with STEMS.

green chicken feet
Nov 5, 2015

spray-paint the vegetables
dog food stalls
with the beefcake pantyhose
Grimey Drawer
Most doctors certainly have the innate ability and work ethic to be able to resolve difficult health issues. I think it's mostly a combination of lack of time plus, as Arkanomen mentioned, possibility of lawsuits, that prevents them from trying more creative approaches, leaving us with a tech support style of approach. (although instead of being able to talk to a manager, you will get bumped around from specialist to specialist) When things are pretty cut and dry, the system works fine, but more unusual cases can be SOL.

Mega64
May 23, 2008

I took the octopath less travelered,

And it made one-eighth the difference.
OP, I know you've already said you plan to get therapy but seriously get therapy, because if your wife does somehow come back as her original self she still may not recognize the person you've changed into through this ordeal. How are you going to adjust to life after she comes back or dies? You've acknowledged it's not going to be simply back to normal, but I don't know if you're really as prepared for everything as you think you are. Hell, if you ignore therapy for awhile there may even come a point where your presence may do more harm than good to her development.

Still hoping everything works out for you and your family. Even if everything falls apart, your experiences might give hope to others in a similar situation.

jabby
Oct 27, 2010

green chicken feet posted:

Most doctors certainly have the innate ability and work ethic to be able to resolve difficult health issues. I think it's mostly a combination of lack of time plus, as Arkanomen mentioned, possibility of lawsuits, that prevents them from trying more creative approaches, leaving us with a tech support style of approach. (although instead of being able to talk to a manager, you will get bumped around from specialist to specialist) When things are pretty cut and dry, the system works fine, but more unusual cases can be SOL.

As a doctor there are two occasions when you're accused of being glorified tech support. The first is when someone has a bunch of health problems that are interacting in a certain way meaning there's an opportunity to tailor treatment specifically to them, and some doctors don't have the time or inclination to do that. That's justified.

The second time is when someone has a fairly simple problem but there isn't much we can do about it, and they are angry and desperate. Then any attempt to explain the lack of evidence-based treatment is interpreted as a refusal to think outside the box and a lack of desire to help. That's less justified, although it is understandable. People want experimental treatments and false hope, things we are ethically bound not to offer. But sometimes sticking to those obligations means making people unhappy.

Avshalom
Feb 14, 2012

by Lowtax

Arkanomen posted:

You posts have gotten more erratic recently. It might be time to stop, reevaluate your situation and look into getting assistance for yourself and your wife. No one says you have to do it alone. Take a break and get perspective.
yeah op when i tell you to get you time this is what i mean. i'm fully aware that you're currently engaged 24/7 in your wife's everyday care and she needs your constant attention so at the moment, no, you can't take a break because you only get like an hour at a time and you have to spend it on pressing issues not related to caregiving. but why can't you get someone to at least help you share the workload? like i get it, you're doing groundbreaking stuff that you feel you need to be present for, but is there any reason why you can't hire a nurse or something to look after her for blocks of a few hours at a time when she's not in the hyperbaric chamber? most of what you described in the daily routine is just basic care that anybody could do. there are people who just do night duty for patients needing in-home care, it's their job to sit there and turn them every two hours and change them and all that other stuff, they do that for a living and they're good at it, and that would at least let you get some proper sleep. or someone could be with her for the morning, you could go off and do other necessary things without feeling like you need to rush, and then you pick her up when it's time to go to hbot. is there any particular reason why you don't want to do this? at the moment it sounds like you feel obligated to spend every waking moment with your wife and honestly nobody expects you to do that, least of all her.

BeanBandit
Mar 15, 2001

Beanbandit?
Son of a bitch!
Medical school is literally just 4-8 years of Googling.

Fayez Butts
Aug 24, 2006

I'm a self-taught doctor. I dropped out of school, just like Bill Gates

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FAN OF NICKELBACK
Apr 9, 2002
So I intended to be pretty done posting for a month, but drinking a ton after saying goodbye to daughter, essentially for a year after being the only parent she had taking her to her first day of school . . . probably not a good time to do much of anything publicly. Even internet publicly, which while much less important or meaningful, somehow adds a layer of clearly absent dignity. Sucks. My bad all. This was all just sorta supposed to spell out a journey, not dick around with people about it.

I just want to point out that my kid doesn't deserve to watch her mom die, and likewise shouldn't be forced to experience her recovery. Neither one will be pretty, no matter how complete either of those paths end up. My wife's family are all OK people who I thought I was gonna outwit is all. I'd started out to prove I was absolutely right about a vacancy in a lady's noggin, and I'd be able to paint a path to letting her rest and leave us with only the memories created by a person who'd earned them. That didn't happen. Ain't gonna argue whether it should have or not, gotta neuro appt, we'll get the in-depth scans and testing that will measure exactly how off or not off I am about all this.

Imma close this for a month though, and just wanted to apologize to a ton of medical professionals. We don't agree, but it's about different things than you've been upset about. I think, anyway. I don't disagree that if you played odds that what I'm doing has a remotely better chance of ending well then ending tragically for all the very interconnected reasons you think I don't understand.

I'm not a hero, or a villain or a fool. Sometimes "the impossible" is the only thing you can shoot for, because otherwise every day passes only to amplify something you think was a horrible mistake and that you can't take back. Not because of other people, because of who you are, and also because the person of interest isn't giving up faster than you. I ain't wrong or right, and neither are a ton of docs. That last sentence is about the only immutable fact any of us got.

Don't be arrogant. Don't defend me or attack me. It's sillier than hell. There's a way more interesting discussion that could be occurring, and a way more valuable self-awareness and insight into what we're all ready for that I think has been missed.

So, my bad. I mean that.

I gotta appt. for myself set up too aight, not cause of a post or whatever, but because poo poo hurts a lot and for the first time I was OK being drunk knowing just how tilted my emotions were going to be as I did it. I drink a lot, always have, but never when it could tip a scale, and this time I knew it likely would and didn't care. Thank god all that happened was a dumb internet rant and a few self-righteous drunk texts.

Whether I'm right or wrong, lady ain't got another person who's in charge of being her, for her.

Hope I got good news in a month, or at least something that feels like a place everyone can just sorta agree doesn't need anyone blaming anyone anymore. If not, w/e it's SomethingAwful, so why not.

EDIT: Loophole, editing this.

Just got back from a neurologist. One completely outside of the loop of anyone who's seen her or knows anything about her, and picked only based on a mix of reviews and research into their backgrounds to make sure they actually accomplished things beyond just going to work. She, the neuro I mean, was not particularly fond of me TBH. Nor was she interested in much of the backstory I tried to espouse beyond a specific and linear track of relevant details she kept guiding me back to.

It felt kinda great talking to someone who wasn't invested and knew what it was they needed to know to best examine a patient neurologically. Just the fact they approached her condition *truly* clinically, not personally or with investment either way, really sorta settled me. It wasn't warm and fuzzy, but it was trustworthy, and I was terrified the entire time because I knew whatever she said was sorta unequivocally gonna be the most accurate view on the situation.

Anyway. There was a ton of conversation, most of it just me rambling and being corralled. She poked things, knocked on things, asked things and examined things.

Before we left I asked, "So, look, is what we think we're seeing real or standard nutty family stuff"

she said, without hesitation (or emotion, actually), "She's definitely conscious."

She was professional as hell, vague about a ton of things, but still spit out that line with a hard stop on it. Floored me. I was waiting for hemming and hawing around an answer or another dry interrogation as to whether or not I'd thought of this or that perspective.

She ordered an fMRI. An EFF-MRI. That's pretty insane, in case you aren't in the loop. I've wanted one for Kim since forever, had problems securing one, and she just started telling staff to get one. That's pretty interesting and good IMO.

Also showed her the complete list of all chemicals and therapy, meds, suppliments and chemicals she's getting. Without looking up, she said "I'm impressed. We'll get the scans, and in 3 months repeat the scans and review the progress she's making and go from there. This is a slow process, but there are positive signs."

Well, I will be. That was genuinely the first completely unexpected thing that I've experienced so far.



FAN OF NICKELBACK fucked around with this message at 02:13 on Sep 16, 2016

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