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Well that didn't take long for me to find another article subject. Turns out that subtle interface glows can do quite effective damage to photo-sensitive people To show the issues I'm talking about, this let's play video works very well. https://www.youtube.com/watch?v=fHKQwrwlv10 The skybox at 3 minutes and the one at 3 minutes 57seconds are prime examples The blinking buttons are shown at 4minutes 9seconds. Combat indicator is found at 12minutes 24seconds. I wasn't able to find a timestamp with the new tech unlocks blinking, but since it is the same as the ones displayed when you have the free capital ship option and the newly made capital ship appearing in the top right, I'm sure you get the idea. It doesn't seem like much and on their own they probably wouldn't be (aside from the skyboxes), but it unfortunately all adds up. SerthVarnee fucked around with this message at 09:21 on Aug 18, 2024 |
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Aug 18, 2024 07:11
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Yeah now I know what to "look for" I can see what you mean straight away once it's "in game" with the glow on the planet against the background etc. not something I would have ever thought of. In the couple of random discussions I've had with people off hand I've mentioned the patterns as a seizure trigger which has surprised more or less everyone. Anyway I forgot to take my meds this morning as I was in a rush and my usual routine got messed up, but good news, I didn't take them until midnight last night so by the time I'm back from work I'll only be 6-7 hours "out" on the nominal 12 hour gap between doses, thanks disorganised me! I once managed to forget to take them for an entire day (as in, both doses) but this is actually pretty rare. I have some backup ones in my work bag but of course this is the one day I don't actually have it with me for logistical reasons.
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Aug 22, 2024 07:57
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Also I started Keppra in the evenings to build the dose up. No rage yet though!
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Aug 22, 2024 07:58
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Powerful Two-Hander posted:Yeah now I know what to "look for" I can see what you mean straight away once it's "in game" with the glow on the planet against the background etc. not something I would have ever thought of. In the couple of random discussions I've had with people off hand I've mentioned the patterns as a seizure trigger which has surprised more or less everyone. Yeah the one part I hate about pointing out the various seizure triggers, is when I get the stunned "is that little thing enough to mess with you?" Obviously it's meant as a "oh poo poo, we need to be even more on the ball to keep you safe," but I usually hear it as "are you really that weak?" So far I've managed to forget to take my meds about 3 times total. Never managed to forget it twice in one day (yet). How much does it affect you if you miss an entire day's worth? Cause missing one hasn't really felt any different.
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Aug 22, 2024 08:14
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SerthVarnee posted:So far I've managed to forget to take my meds about 3 times total. Never managed to forget it twice in one day (yet). I didn't notice anything! I only realised because I have things set up so that I start a pack on a Monday so when it got to Wednesday and I was only two tablets down instead of four I was like "hey, did I miss some?". I guess it's another thing that's kind of fortunate - it's not like "don't take meds: have seizure". I think this is in part because though the dose half life is 12 hours, you have some level of systemic build up or something like that.
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Aug 22, 2024 09:27
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Keppra week one: yeah pretty sure this is giving me the irritability I got when starting/increasing lamotrigine. Only another 7 weeks until I'm at target dose so hopefully I don't get this the whole time or have it stay around permanently!
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Aug 27, 2024 08:33
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I had my follow up meeting with neurology last Friday and, while asking if I felt like I needed my dosage increased, he mentioned that Lamotrigine is babby's first dosage for beginners. I'm good at this level, thanks. I don't really need more exciting side effects in my life.
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Aug 27, 2024 11:29
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SerthVarnee posted:I had my follow up meeting with neurology last Friday and, while asking if I felt like I needed my dosage increased, he mentioned that Lamotrigine is babby's first dosage for beginners. What's the current dose you're on?
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Aug 28, 2024 15:38
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100mg morning and 100mg evening.
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Aug 28, 2024 18:30
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SerthVarnee posted:100mg morning and 100mg evening.  above that it hosed my sleep up so came back down to 100. Apparently might take it down once the Keppra is up to dose if it works but seeing as it might be anywhere between 1 and 4 months to actually get a feeling for whether it does or not this may take a while.
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Aug 28, 2024 18:35
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I've finally gotten around to reworking the tags for all my blog posts. They now have helpful tags such as "electric effects", "screen shaking", "fisheye lense" and so on. Should make it a lot more useful for those looking for a specific type of graphical effect. https://electronicepileptic.wordpress.com/epileptic-trigger-examples/
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Sep 20, 2024 12:14
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I should enter clinical trials because I've once again hit an "uncommon" side effect with starting Keppra of irritability and this time and actual irl "incidence unknown" of hair loss/thinning. I thought that was just getting old but a) I'm not that old and b) I've had ridiculously thick hair all my life and this is like a sudden reversal and hey guess what, I started Keppra two months ago! Not really sure what to think about this, I always said that I'd go full shaved if I was going actually bald but I'm not even close to that yet.
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Oct 2, 2024 23:37
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At least you might get to save money on shampoo? I'm still waiting to see if my hair ends up completely white by the age of 40, just like my granddad before me. Really wouldn't mind that, cause it might make people shut up whenever I tell them that I feel so loving old and tired. Yes, I realize I'm 38. Yes, I am aware of that still being considered young. Fantastic that you are 68 and still feeling young. I've been so tired of life ever since I hit 14 and my parents went through their divorce. 10 years of suicidal depression (from age 14 to 24), and a bonus round of 4 years of escalating epilepsy issues, take their toll. Oh and protip: Don't start a conversation with the topic of your ongoing divorce and then switch over to statements like "we had you to give ourselves a strong pillar, keeping our marriage strong and healthy." For some reason this was met with confusion when I wasn't super thrilled. SerthVarnee fucked around with this message at 14:49 on Oct 3, 2024 |
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Oct 3, 2024 14:47
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Ooof. I've always said that I'd want to go all grey instantly but it looks like that one's getting dragged out. I just need to not go into a full comb over like my grandad did. If this actually is from the Keppra and it continues beyond thinning id rather shave my hair off than live in a half and half world. Maybe my insanely thick eyebrows will offset it idk. So far with the Keppra no definite seizures but maybe a "half asleep so not sure" one. I've had those before but those were noticeable, this might just be one of the vivid and crazy dreams I now have. I bet the neurologist says "hmmm, let's see what happens. Come back in two months".
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Oct 3, 2024 15:12
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I can't find the post right now, but I remember someone on the forums telling me that Lamotrigine works as a salt blocker. Holy poo poo you weren't kidding. My housemate made dinner, trying new things to see if they work. Today included plonking two of those bouillon cube in the rice pot and letting it boil up with them. This was a mistake. Turns out those cubes have a metric loving ton of salt in them. I took like five bites of the dish and I'm feeling really hosed up 2 hours later. I can almost hear the Futurama quote where Bender goes: "There was nothing wrong with that food. The salt levels were 10% less than a lethal dose."
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Oct 8, 2024 18:33
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That could just be a shitload of salt though, or whatever else is in those cubes? I recently looked at the salt content of some instant noodles and holy poo poo, no wonder I get thirsty after eating them.
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Oct 8, 2024 23:26
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I've definitely noticed a massively reduced tolerance to salt after I started on the meds. Usually I stuffed down half a pack of bacon as part of my healthy nutritious breakfast. Now I can eat about one or two slices of bacon before my throat just goes "either you stop, or I'm gonna stop you for you. Permanently if need be." Found the quote. It was from a discord server chat: Quote: one of my favorite random things about Lamotrigine is that it's famous in psychiatric circles for having "the most complex medical interaction chart of any mainstream med approved by the FDA." Like, the stuff interacts with everything which modifies dosage requirements immensely. When I was prescribed it, the nerd in me looked it over and was just "wow, yeah, this stuff is just wild." Also, "lethal skin necrosis" is one of the all-time greatest freaky side effects of a psychiatric med (it's because it's a sodium channel blocker).
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Oct 8, 2024 23:30
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Hmm now that I think about it the warnings about "if you get a rash then..." Were a lot more severe with the lamotrigine than the other meds, didn't know that was a sodium channel thing though, interesting! What's also interesting is that ever since I increased the dose above 150mg a day I would wake up in the night desperately needing the toilet and this went down when I decreased the dose. I figured I was also just getting old but when I was on holiday recently and ate a shitload of salt pretty much every day (local food includes potatoes boiled in salt water and then salted, they're extremely good) it was much worse which I figured was "kidneys desperately trying to remove salt from the system" and hasn't happened before. I'm gonna have to ask my neurologist about this next week!
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Oct 9, 2024 07:42
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Somehow got super dehydrated yesterday and had some night seizures  I also managed to miss my morning does yesterday which probably didn't help. I'm about to change dosing to reduce lamotrigine and increase Keppra, let's see if reducing the lamotrigine actually does something related to salt excretion!Also as predicted, the neurologist said "hmm what do you think we should do?", hence the above.
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Oct 22, 2024 08:23
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Lol, that just oozes confidence right there. Nice to get to have a say in the decision making though.
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Oct 22, 2024 10:48
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SerthVarnee posted:Lol, that just oozes confidence right there. One of the things I hate the most is it's like "well I guess we'll try X and see what happens" because there's no mechanical "take this and it'll solve it" magic. Doesn't seem to help that Ive had persistent side effects on two of the meds when going up above a medium dose.
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Oct 22, 2024 11:00
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I'm starting up a collaborative effort with a blind accessibility advocate know as SightlessKombat! Together we shall use the power of photo-sensitivity and blindness to make games more accessible. However, we'll need to get me attuned to the real needs and limitations of gaming with no vision first. It's going to be great fun. I'm in this to make a sort of roundabout way to make games accessible to photo-sensitive people by making a game playable with the screen turned off. It's a wonky compromise compared to making the graphics safe for me, but it is a way to give devs a metric for what is too much graphics. If they can get a metric that tells them people would rather shut down their monitor in a given scene and play it entirely blind, that'll give them an understanding of people's boundaries, without people like me killing ourselves to show them the rough outline. The best part about this project is that it'll make a game safer for me, by making it entirely playable for people like SightlessKombat. It'll also give us a ton of entertaining evenings as I wear out my voice, narrating everything for a guy who spends his time joking about the game holding us back. So if anyone has any suggestions as to games we should try out, that we could reasonably expect to play without too much handholding and narrating, that would be great. We've tried Might & Magic X: Legacy and Warhammer 40k Gladius, both with instant obstacles that I never thought about before. Next one is going to be Dwarf Fortress, which I know for a fact can be done entirely with a keyboard (in fact, it has been actively hostile to mouse control for years before the steam release). Tricky part is going to make the text to speech give us any sort of useful information. We've also done a run of God of War: Ragnarok, which SightlessKombat helped work on. Turns out you can already beat it on highest difficulty without any sight at all. Now we just have to fix the details such as: "Doesn't narrate anything in inventory, map, quest log or lore book." "Doesn't tell you what loot you've picked up" "Doesn't tell you what the new quest update text on the screen says" and "Doesn't tell you when you are next to loot chests or passing by side paths."
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Nov 10, 2024 15:29
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Hell yeah, I consulted with SightlessKombat early on in development of my current game. My ultimate goal is to make it blind-accessible, but I'm nowhere near that yet (i.e. no screenreader support and only fully-supported input is the mouse). But I wish you luck! ...I don't have a clue what games would be good test beds though, sorry.
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Nov 10, 2024 15:36
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Any game that can get past the main menu and into the meat of the game would be a good candidate really. We're already pretty aware of the issue that mouse only input in the menu is a game ender. Now we want to look at various games and see what kind of issues crop up during gameplay. We're already working on a way to make OCR (a program that can scan the screen for text and then read it out loud) scan for more than just a single font. Currently the only thing you get from OCR in God of War Ragnarok's inventory is...the flavor text for each item. No name of the items, no stats, so comparison in stat changes. Considering that Sins of a Solar Empire 2 had a lot of menu/interface details that messed me up over the course of 30 minutes of playtime, I'd say it could be very beneficial to just turn off the screen and have the tech tree narrated.
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Nov 10, 2024 16:01
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Friday: I don't seem to have any side effects from increasing my dose of Keppra Sunday: I'm gonna go sleep for two hours in the middle of the day and then get extremely angry
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Nov 12, 2024 11:52
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Exciting news! I went to see the neurologist and he decided that I absolutely need to have an EEG where they flash the gently caress out of me. For science. They also want me to channel my inner nerd and stay up all night beforehand and then sleep during the study. Whether that is going to be a separate event from the "sitzen sie da und watchen sie die blinkende lights" thing, I don't know. Oh and they want to steal some of my blood to see how my epilepsy meds are doing. And then right after that, they want me to go from 200mg per day to 300mg per day. None of that slowly scaling up bullshit where I need smaller dosage pills. Nono, the neurologist thought that would be needlessly complicated for me with all the different pills. So I'm going to go from 100mg in the morning and 100mg in the evening, to 200mg in the morning and 100mg in the evening. That is going to be one hell of a day/week. SerthVarnee fucked around with this message at 11:45 on Dec 13, 2024 |
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Dec 13, 2024 11:43
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That's an aggressive increase, whenever I did it (with lamictal this is) it was in 25mg increments every 2 weeks so it took ages. No blood tests it was more like "let's see if this gives you side effects" and for me it was not sleeping well at all past 100mg. Plus there was the whole furious anger thing while increasing. Also yeah they got me to do one of those even though I had no known photosensitivity and it absolutely sucks . At the top end of the flashing it's like having someone pressing their thumbs into your eyes. So anyway have fun with that. The "don't sleep more than x hours" is so that you sleep during part of the eeg test, I was like "oh did I sleep?" And they said "yeah for an hour" I had no idea. e: wait offset doses? That sounds kinda weird.
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Dec 13, 2024 12:30
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Well he was mostly concerned with getting 300mg in me and even suggested that it didn't really matter if I took the whole thing once or twice a day, since it should work as a duration based drug instead of intensity based drug. If my dosage still needs increasing, he expects to just dump another 100mg in there so I end up with 200morning and 200evening Powerful Two-Hander posted:
Okay, so basically business as usual whenever I get a seizure. Good to know.
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Dec 13, 2024 13:36
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Well, on the downside I had a bunch of seizures yesterday, but on the upside I took the morning off sick today because I was so wiped out I was essentially asleep until almost 1pm. This was 100% a combination of stress, dehydration and lack of sleep from the whole Xmas period. Got a neuro appointment in January and will parlay this into increasing the Keppra dose. Happy new year I guess?
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Dec 30, 2024 16:10
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Going into 2025 with a bang I suppose. Had my mom go into the hospital last night to get a diagnosis of "crystal sickness", which is apparently crystals forming around your balance nerve and just sending you all over the place when you go from standing, to sitting, to lying down or the other way around. Got an aunt who is officially just waiting to go peacefully and I've already lost 2 family members, 1 friend and my little dog. 2024 can go gently caress itself. I'd say I'm hoping for 2025 to be a lot better, but *waves in the general direction the US, Gaza, Ukraine and everywhere else*.
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Dec 30, 2024 18:18
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Good morning everyone! You know, most of the time, my meds take my dreams and turn them into a high definition generic weird dream. A lot of times, my meds take my nightmares and turn them into night terrors. The ones that make you want to swear off sleeping forever. And then some very rare times, you get dreams like I had just before waking up today. A dream where you find yourself loved. Not loved for looks or actions or words. Loved for the way you carry your look, the way you do the things you do and the way you form and structure the sentences you utter. It has been a long time since I woke up with this genuine smile on my face.
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Jan 2, 2025 07:57
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That does sound better than mine where I had a massive argument with my wife about cooking times then David Bowie gave me a smart watch.
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Jan 2, 2025 23:53
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Powerful Two-Hander posted:That does sound better than mine where I had a massive argument with my wife about cooking times then David Bowie gave me a smart watch. Was it.... was it so you could keep track of the Hours?
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Jan 3, 2025 00:56
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Round 2! Dream ride! Recent dream experience has shown me that you should not take the knowledge of me being able to make a DnD plot in 5 minutes, and twist that into giving me a five minute warning before I have to baptize your son. Also, it turns out that one does not baptize a child using honey, orange juice and milk. The correct words are also not "E Fadre, Et Pili, Et spiritus sancti." It is also frowned upon to start the sermon "heavenly father, you who should have known better"
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Jan 3, 2025 04:44
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SerthVarnee posted:Round 2! Dream ride! Sounds to me like you did a pretty good job.
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Jan 3, 2025 09:38
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Steezo posted:Was it.... was it so you could keep track of the Hours? I think it was to solve the cooking time argument where it turned out I was wrong but refused to admit it which is *extremely* on point for me. SerthVarnee posted:It is also frowned upon to start the sermon "heavenly father, you who should have known better" That's a great thread title for something.
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Jan 3, 2025 10:21
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Okay, first day of the increased dosage! It has been 4 minutes since I took the 200mg in the morning and I already hate my life. God drat the nausea.
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Jan 4, 2025 10:53
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SerthVarnee posted:Okay, first day of the increased dosage! Of lamotrigine? I never got that high but hopefully it wears off for you.
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Jan 4, 2025 10:56
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Surprisingly it is already going back to feeling normal again. And yeah, new dosage is 200mg morning and 100mg evening. It used to be 100mg morning and 100mg evening.
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Jan 4, 2025 11:06
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Jeez they go up fast for you, that would explain the sudden side effect hit. Mine they'd only change by 25mg every two weeks *once* a day so going up a 25mg twice a day took 2 weeks and going up 100 would take uhhhh 14 I think. This is partly why it's taking so goddamn long to find a combination that works for me: every adjustment is taking like a month and then a month plus of waiting to see if it's worked or not.
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Jan 4, 2025 11:29
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